Showing posts with label real life stuff. Show all posts
Showing posts with label real life stuff. Show all posts

Sunday, October 25, 2020

Cancer: Aftermath

I feel like I have a lot to say, but I don't really want to voice any of it. Instead, I'll just dump my brain out and we'll see how it goes. 

The funeral was nice, insofar as funerals go. I think everyone honored Cathy with their words and their expressions of love and admiration for her. Several friends showed up, unannounced, just to pay their respects and be present. Most of my family was here, too. I managed to mostly keep it together. The church was kind enough to post the video on their Facebook page for the many people who could not attend. If you want to see it, it's still up.

For my birthday this year, my middle name was Duncan, because I Yo-Yo'ed up and down all day. Low points included missing my wife, and figuring out that my car wouldn't work and making plans to have it towed on Monday. Because, you know, insult to injury, and all of that nonsense.

Thanks to everyone who wished me happy birthday, and also to everyone who didn't, because there wasn't anything particularly happy about the day. You were quite right.

But I tried. I really did. And I'm going to keep on trying, because otherwise, what's the use? Don't answer that, it's rhetorical.

After the last two weeks, preceded by the last four months, my chest is starting to unclench and my breathing is back to normal. Somewhat. I keep getting into crying jags. I am still pacing the house. I'm still anxious, and scared. And sad. Just so heartbroken. I feel her absence, humming in the air like a high note that vibrates my sternum.

I'm going to look into grief counseling. After I fix the car. And pay the outstanding bills. And sign back up for health insurance (we were dropped.) And a half-dozen other things that suddenly need my attention. Somewhere in all of this, I need to have a real serious Come-to-Jesus meeting with myself about what happens next.

I have been incredibly lucky to have known from the age of 15 what I wanted to do with myself. And then I went and did it. Not a lot of people have that kind of clarity of vision, and I know it's a gift. But for the last twenty years, my goals have been intertwined with Cathy's goals. Oh, we had our side projects, too, but overall, we were always working on advancing our own desires and dreams as we helped the other person do the same.

Now I'm alone. And I have no idea what I want to do. For the first time since the age of fifteen, I have no direction, no heading, and no hand on the rudder. I hate the way this feels. I'll be taking some time off for a bit, so that I might figure out what the next phase of my life is going to be with the label "widower" attached to me like a barnacle I can't scrape off.

I'm tired. I'm tired of crying. I'm tired of getting hit with sudden waves of sadness, whack, in the face, like a creme pie made from depression and despair.

I can't get her deathbed out of my head. I close my eyes and I see it. I see her, arranged, eyes closed, and I can smell her skin and feel her hair on my cheek when I cradled her in my arms and sobbed. I have twenty years of great memories, good times, happy occasions, and all I can think about is her final minutes.

I'm not ready to accept this new state of being. It's still too raw. Too maddening. I was afraid of this happening. Alone in this house, pacing around like a caged animal, alternating between repeating lists of things I have to do, over and over, and crying out for my wife in an empty room , because I don't think I can do it all by myself.

Maybe I'm just wallowing. I don't want to let go of the pain, because I don't want to let go of her. I'm just so angry at everything right now. Things are going to move on with or without me, and I know that. This will likely fade into a dull ache. I'll have an epiphany or two and reorganize (and maybe even reinvent) myself and as time marches on, so shall I, older, wiser, ready for what comes next.

Eventually.

Right now, I think I want to just wallow. And I don't want you to see me like this.

 

Friday, October 16, 2020

Cancer: An Obituary


Cathy Day lost her fight with ovarian cancer on 10/15/2020. She was 56 years old. 

Catherine Day was born in Dallas, Texas, the daughter of Richard Day and Diane More, and attended Vernon High School. After graduating in 1983, she attended the University of Texas, where she received a master’s degree in Speech Language Pathology. She taught in various public and private schools in California, Maryland, and Texas, helping learning-disabled children to read and speak, for two decades.

 Cathy was a lifelong student of the theater and she acted in plays throughout her school years. As an adult, she was active in community theater in Austin, appearing in Different Stages productions, and later with the Violet Crown Radio Players, of which she was a founding member. In Wichita Falls, Cathy was proud to call the Backdoor Theatre her creative home and she appeared in several productions, including “Sordid Lives” which earned her a Genesius Award for Best Actress in a Non-Musical Role, and “Dirty Laundry,” where she co-starred with her husband, Mark Finn.

Cathy met Mark in the Summer of 2000 and they were married in October, 2003. They later moved to Vernon as co-owners of the Vernon Plaza Theater where they lived and worked. Cathy was a member of First Presbyterian Church of Vernon and was active in the community as a founding member of Leadership Vernon, The Vernon Main Street Program, and the Vernon Farmer’s Market. She always had a smile and a laugh for everyone she met, and the memory of her kindness, her gentle nature and her warmth will be a comfort to her mother Diane; her step-father Pat More; her sisters: Susan, Barbara, and Erin; her brother Mike; her many nieces and nephews, and her husband, who survive her, but will never forget her.

 In lieu of flowers, the family has requested giving a donation to the Backdoor Theater in Wichita Falls in her name.

My thoughts are below. Fair warning: this is uncomfortable, and I don't recommend  you reading past the break unless you want my raw, unfiltered take on all of this. 

Friday, October 2, 2020

Cancer: End Stage

I don't know how much more of this I can take.  

Cathy took a turn this week, and it was bad. Last Sunday, I worked up the energy to come into the room, brightly, like I've been doing; I don't want her to see my anguish, and I know I'm not hiding it as well as I think I am. We've cried together enough. I'm trying to be a comfort to her. 

Ordinarily, she greets me with some variation of "There you are! Finally!" However, when I came in on Sunday, she was asleep. I let her be. She didn't wake up until around 9 pm. She looked surprised to see me, but couldn't really talk. I'd seen this look in her eyes before, and immediately thought about the double-up of medicines. 

But that wasn't it. She was just getting worse. Slower, weaker, more confused. 

Someone is always with her overnight; me or one of her sisters. We're all suspending our lives to help Cathy at the end of hers. I made plans to go on Thursday, because the doctor said we are getting close to the end. 

When I walked into the room, she was asleep again. This whole time, I've been able to see Cathy in and amongst the tubes and the gowns and the sickness. I could still see her, the person I've spent two decades with. 

Last night, all I could see was the disease and what it has done to my beautiful wife. The swelling, the discoloration, the distortion of her skin, the skin she diligently cared for her whole life. It was too much. I've been holding open this gaping wound over my heart since July and I didn't think I could rip it open any wider, but I was wrong about that. I cried over her, quietly, as she slept. 

She's been having pain when she uses the bathroom, and it's very likely a urinary tract infection, which can cause fogginess. They put her on antibiotics with a shrug; it couldn't hurt, they said. But they are all certain it's disease progression, a euphemism I've come to despise. 

She moaned in her sleep, all night. As usual, they woke her up every two hours to see if she was resting. I couldn't help ease her pain. I could do nothing, except wipe her mouth when she coughed up phlegm. She assured me I was doing a good job. It's harder and harder to understand her. 

This morning, she was a little more alert, relatively speaking. They gave her the scheduled meds, including the antibiotic, crushed up, and mixed with pudding, Michael Scott style. She didn't eat last night. I just want her pain to go away. I don't want her to die confused and in pain. 

Before I left, I put on Downton Abbey for her. She was watching it as I packed up to leave. There was a scene where someone turned on the phonograph and asked for a dance. Others followed suit, like one does in Downton Abbey.  I leaned over to kiss her forehead and tell her I love her and she said, "I need you do do something for me." 

"Okay, sure, what'cha need?"

"I want you to tell the doctors..." she drifted away for a second. 

"Tell the doctors what?" I prompted. 

She snapped back and locked eyes with me. "Tell the doctors I've forgotten how to dance. They need to teach me. I forgot how."

Somehow I managed to smile from behind the curtain of tears and said, "I'll teach you, baby. It's easy. I know all the steps. It's going to be all right."

She nodded, satisfied, and tried to touch my hand. "Don't cry, honeybee." Her arm was swollen and she had trouble moving it. I took her hand instead. 

I don't know how much more of this I can take. 

2010. She would hate me sharing this picture,
but I think it's beautiful. This is Cathy.

Friday, September 4, 2020

Hospice: Our New Normal

 Cathy has been in Hospice for five weeks now. It feels like forever. I am struggling with watching Cathy's gradual shutting down. She is at the point now where she is bedridden; her leg muscles can't support her and so any scenery changes she wants to make are done with nurses and a wheelchair. Her short term memory continues to fade, as well. People, faces, events and things are all crystal clear to her. But she can't keep up with her phone. In bed. She can't quite remember from day-to-day how to work it, either. She learns it in the morning, but by the evening, she needs help again. Hospice keeps telling me it's "disease progression." It's getting on my nerves. She's not sick, she's hungry. 

Monday, August 17, 2020

Cancer: Hospice, Week 4

 (Warning: Language)

What a shitty week. 

Sonya wasn't too happy about us leaving Cathy behind at the Hospice Center. This is her as I was driving out of the parking lot. Her way of saying, "You left a man behind, dude!" 

Trust me, Sonya. I know. And I'm not happy about it, either. 

Cathy continues to hang on, her heart beating strong, her mind struggling to connect, to understand, her lungs working, her muscles flexing. She's willing. But her body is slowly killing her. It's the worst kind of torture to see her slipping in increments that could be measured in centimeters, and there's not a thing anyone can do about it. 

What makes this doubly galling is that Cathy's own body is cutting off her food supply. And Cathy has never been one of those people with hang ups about food or eating. She loves to eat, and she loves good food. She's always appreciative of anyone who cooks for her. Our first date, I made her chicken parmesan, and she was so impressed, she married me three years later. 

Monday, August 10, 2020

Cancer: Hospice Supplemental

 

Most long-time readers here will recognize the name of Sonya, our affable pit bull pooch with the winning personality and a bevvy of entertaining tricks. She's ten years old now, and she's lost a little bit of bounce, but only a little. We've been pretty lucky in terms of dog maintenance; she hasn't cost an arm nor a leg, and aside from the occasional itchy eye from high pollen days, she's reasonably healthy. 

Last year, we took her to a specialist in Wichita Falls because (and I didn't know this) apparently pit bulls have those big, fleshy mouths that continue to grow as they age. The teeth get covered up by the gums and that's what causes the stinky-mouth, and left untreated, can rot teeth, forcing an extraction. We didn't want that, but Sonya's mouth was definitely in bad shape. 

The process is straightforward; they use a laser to cut off the excess tissue and cauterize it. This was a little more than Cathy and I could pull off last year, so we made plans to do it in 2020. 

Fast Forward to August, with the world on fire and my life in turmoil. I've got a dog with a stinky mouth, and she's in the dumps because she can't find her human, Cathy, anywhere. I've also got Cathy, pining away for her sweet baby. I've squirreled some money away for Sonya's health needs, and I thought this would be a great way to kill two birds with one stone. 

Thursday, August 6, 2020

Cancer: Hospice, Week 3

I'm running hot and cold. Some days, I've got full functionality and can do normal things and feel like an adult, and other days, I'm clutching my stomach and staggering around like I've been junk-punched by a silverback gorilla. The worst days are the ones that start out as normal and end up junk-punched. 

Cathy is still in hospice. I don't want the word "still" to have any undue emphasis, like I'm disappointed. Quite the contrary. Rather, the emphasis should be on "in hospice," meaning, she's not home yet. Yet. 

I'm still trying to find a scenario where she gets to come home. I don't have a solution yet, but I'm working on it. In the meantime, I find that a routine is settling in with us, almost like the schedule of a long-distance trucker. I'm on for three, off four four. But those three are 18 hour days a piece. This is exhausting, and the whole family has been rocked back and forth, up and down, and we are all frazzled. 

I don't want anyone to think that I am not grateful for the assistance; I am. It's been really nice having someone, anyone, in the house when I get home. But I want everyone to know that I am absolutely festooned with feminine energy right now. Covered up, even. I'm pretty sure I've started to ovulate. Everyone's cycle is all linked up, now. Mine, the dog's, everyone. 

I've been sitting on some short takes and little incidents that have stacked up in the last few weeks, and I want to share a few, if only to take my mind off of the grind of the days. 

Monday, July 27, 2020

Cancer: Hospice Week Two Update

I'm going to start this with a strange little coincidence. Cathy was moved into the hospice care center in Wichita Falls about ten days ago. They got her in and comfortable and settled and I hung around outside while nurses and orderlies swarmed over her and did stuff. 

As I was sitting outside, I noticed the tiles in the building were all donated--you know what I mean, where you pay a certain amount and sponsor an oblong tile in the name of a loved one, or just as a donation from a family or an organization. These tiles (bricks?) run two-up all around the walls, like wainscoting, down every wall and across each doorway. Outside each room, however, there is a larger plaque, presumably reserved for larger donations, or to sponsor a room. Here is the plaque outside of Cathy's room.

It says "The Hoblitzelle Foundation" for those of you who can't make it out. I read it and a chill ran down my neck. Let me explain why.

Friday, July 17, 2020

Cancer: Hospice

We tried.
We really did.
Cathy tried hardest. 
But in the end, the pain won out. 

I took her home from the hospital on Wednesday, with the understanding that in order to qualify for this eleventh hour clinical trial that had just opened up, Cathy would need to be able to eat without throwing up. She had to keep food down. Or, well, you know, broth. Soup. Liquid. 

Her family was waiting for her when we got home, and they helped her upstairs and get settled. It was nice having folks around, and Cathy seemed cheered by their presence, if a little tired. She tried to eat something, but gave up. The heartburn and nausea were back. 

We tried to get home health to come out, but a snafu with the hospital showed our visits had been canceled because the social worker thought we were going to Oklahoma City. That was frustrating, to say the least, and so I spent an hour on the phone lining up meds for Cathy to be administered tomorrow. All she had to do was get through the night.

She got about one hour of sleep. The pain and the cramps were just too much. I didn't do much better, but I napped a bit, and then started calling people at 7:30 to get her some help. I was on and off the phone for roughly four hours. In the middle of all of it, Cathy said, "Call hospice." 

When everyone showed up, it was all within a ten minute window. The house was full of health care folks, and it took a bit of sorting out. In the end, this is what we decided: the Hospice people have an actual facility in Wichita Falls, and by checking her in there she'd have constant care. They would get her stabilized and comfortable, and then we could send her home for home care in a couple of days. 

Back into the car we went, and drove back to Wichita Falls. I've come to really resent that drive.

She was made comfortable, in a nice, spacious room, that looks like a nursing home room decorated by a mid-price hotel room. Hey, it beats the hospital. She was feeling better, and we were amiably chatting about I don't even remember what, when she grabbed her nausea bag and filled it. 

I jammed the button and yelled for nurses. They came running and took over as the crap in her stomach poured out of her. I've never been so scared, nor felt so helpless. 

They cleaned her up and changed sheets and all of that, and also gave her a powerful anti-nausea med in her port. Later, at midnight, she would get a drug that limits the production of stomach acid. But even after she threw up, she was feeling better. And I think we both realized at that point that what she did next was dependent on her stomach. She wouldn't be able to eat solid food anymore. And for now, liquids were working, but they may one day stop. And then the clock would start counting down. 

I read to her until she fell asleep. I watched her, until some time after midnight, and then I crashed in the chair. I woke up with a nurse in the room, and Cathy awake. "Hi, Honey!" she said. Perky. Like her old self. She was hungry, and wondered if they would bring her crackers. I told her no. But I get it; she's feeling better now. We had a long talk about stuff, interrupted only by a nurse who said her doctor had ordered some more drugs for her. He wanted to know if he should order a NG tube (that thing that went up her nose in the hospital).  I said no, she didn't want that. Cathy looked at me and said, "Well, maybe."

This is what we are currently weighing. With the tube, she's going to be able to hang on for a while. But she will have to stay in the center. She can't come home with the NG tube. If she takes that NG tube out, the timeline is shortened, but then so is her pain and discomfort. 

The drugs she is on right now seem to be working spectacularly. She has a day or two to mull it over. We've all decided that whatever Cathy wants, Cathy gets. That includes Ginger Beer, as I am under strict instructions to bring some back when I return. 

And that's all I know at the moment. She's resting and she's comfortable--well, as comfortable as she can be in a hospital bed. She's seen a lot of family and she's got more coming. She's making calls and talking to people. I don't know if this is a rally, but I hope it is. I hope we see a few of them. 

I know these posts are upsetting to a lot of you, and I don't want you to have these terrible images in your head as the last memories of Cathy that you have. I'm not going to show any more pictures of her fight with cancer. Instead, I'm going to show only pictures of the Cathy we all remember, the Cathy we know and love. This is one of the photos we took for our engagement announcement. Not a lot of people have seen it. I guess it was a little too mushy. But it's a really good picture. 


I will post again when something changes. Hopefully I can get Cathy home one last time. 
Thank you, everyone, for your friendship and your love. Thank you for your courage and for going through this with me. Thank you for everything, from me and from Cathy. You've all made an incalculable difference in our lives. 


Thursday, July 9, 2020

Cancer: Three Days Later

Many of you aren't on Facebook and don't follow me there, so here is the update on our situation. Suffice to say, we are mostly out of the woods now, and Cathy is doing much better. Thank you all for your words of comfort, encouragement and strength and support during this hellish ordeal. It's been a long week. I feel like I've aged a month. But things look much much better.

Tuesday, July 7, 2020

Cancer: Three Days

Happier Times.
Two years ago, almost to the month, Cathy started cancer treatments. At the time, she had a rare and aggressive form of ovarian cancer, and they were calling it Stage 3, but with a look on their faces that suggested that number could change at any second.

We were terrified, if I may be allowed the largest understatement of my professional writing career. Petrified. But also, weirdly, galvanized. There was a sense—more from me than from Cathy—that this was a temporary state of being. An inconvenience to be conquered, and then monitored closely thereafter. We were getting older. Trade-offs being, now we have health problems. But even though the numbers of recurrence were scary, 48% chance of the cancer returning, we were committed to powering through this. The cancer, after all, showed up at the worst time. Super inconvenient. We were just getting our shit together, after, what? Fifteen years of marriage? But we had time to fix it.

Now we have seventy-two hours. 

Tuesday, March 24, 2020

Health Update: Cancer and Quarantine

Cathy and Sonya, rocking the matching sweaters.
It's been a while; too long, in fact, and I sincerely apologize. 

We're all friends here, so I'm just going to dive right in. 

I'm not in a good place right now. About two month ago, I realized that with the stress of the recurrence of Cathy's cancer so quickly on the heels of the successful surgery, and the subsequent difficulty of Cathy's chemo treatments on her (and by extension, me) this time around, I had slipped back into a state of depression. 

I wish I'd caught it sooner. This self-diagnosis was a result of some tangential health concerns popping back up and me realizing that I'd not been addressing them like I had been before. Mostly therapy stuff, but also some physical symptoms, too. 

Man, this whole ordeal has just sucked. 


Wednesday, November 27, 2019

Cancer: The Devil You Know

The water she has to drink
prior to the CT scan
.
It's been a while since an update, and that's because we've been overwhelmed with the new chemo cycles and the crippling downturn of the entertainment industry this year. I'm used to not being busy due to high school football, but it's been worse than that, and for months instead of weeks. We are both dealing with life, the best way we know how. My way, for example, includes bourbon.

At the last visit to the oncology center, Cathy was chatting with one of the nurses she's gotten to know better and we found out that there's a cool, fun nickname for the melted Flavor-Ice looking stuff that she gets at the beginning of each new cycle.

They call it "red devil."

I wish I was being funny.

Friday, October 25, 2019

Some Thoughts on a Half-Century

Taken one week before my fiftieth birthday. Not much
has changed since then. 

Not to put too fine a point on it, but this is not the year I imagined having.

I mean, who starts their year, literally the first day of the year, in recovery from surgery? And who gets dangerously sick because the recovery time is freakishly, abnormally long, and winds up spending nearly a week in the hospital? Who does that?

Well, I do. At least, when I’m not looking after Cathy and her second round of chemotherapy, which is an even more treacherous and unpredictable ride than the first round, which we only barely began to recover from when it was revealed to us that nope, she needs to go back on again.

Nuts. Nuts to all of it. Including (but not limited to) my much-decreased but still tumescent scrotum. Turning fifty has royally suuuuuuucked. Not for the usual reasons, though. But it’s been a shit-show, pretty much, all year.

Let me ‘splain. No, there is no time; I sum up.

Thursday, September 12, 2019

Cancer: Here We Go 'Round the Mulberry Bush...

One of our friends thought I was wearing a
tuxedo shirt. It was funny at the time, but
now I want a tuxedo shirt. She was right:
it is a "me" thing to own.
Cathy started chemo. Again. New drugs, more powerful (and more dangerous) than the other ones she was taking. Side effects? You betcha. Plus possible health complications, too. And all of this done with fingers crossed, because while this is the Standard of Care, it's a crap shoot. I mean, we thought we had it licked the first time, right?

The fact that the cancer came back so fast is what makes this a serious situation. Hence the stronger drugs. Also, we only have to wait two months before they do a C.T. scan to see how the tumors are responding to the chemotherapy. If there's shrinkage, we will plow ahead. If there's no shrinkage, or worse, spreading, well, that's a different conversation. One I'm not willing nor ready to have just yet.

Things are still cautiously optimistic. There is no surgical plans at this time. There's other stuff available, including clinical trials that have shown "remarkable results" according to the doctor. Staying upbeat, staying positive, has been one of the most exhausting things I've done in a while.

Monday, August 19, 2019

Cancer: Well, Shit.

It's back.

Talk about counting some chickens. I had always thought I might have to deliver the bad news again; after all, Cathy's cancer of choice was particularly pernicious and there was a high chance of recurrence. But after she responded so well to the chemo and the surgery was so positive, I thought--we thought--we'd have a year or two before we had to worry about this again.

We sure as hell didn't think the down time would be three months. Not even an "All-Clear" to the end of the year? Come on, Cancer. I know you're an asshole, but do you have to be such a fucking asshole?

Here's what we know: because of the quickness with which the cancer has returned, it means that Cathy has developed an immunity to her chemo drugs, so we are going on to treatment option number two: different chemo drugs, with side effects that are a cause of concern. Specifically, blood clots, which are already a problem for Cathy to begin with.

This is a six month treatment. Not sure what that will fully entail, but she's going to start the week after next. And just like that, we are back in the barrel.

In an effort to provide balance to this shitty update, I have two pieces of news that may offset some of the existential dread I feel right now.

Numero Uno: Since we caught this new cancer (still in the lining between her organs) inside of three months, it's much smaller and so hopefully we won't have to deal with any surgery.

Numero Two-oh: My edema continues to shrink and has in fact reduced size and density by two thirds. It's still deformed looking and horrible, but it's a much smaller horribleness.

I'll put more up when I know more. This week we have two different tests to determine if there are going to be any complications with the treatment. I've also updated the GoFundMe account, as we are already getting static from the insurance company.

Well, those three months where Cathy was okay and I was getting my mojo back were pretty swell while they lasted. Looks like I'll be seeing everyone on the other side of 2020.

Monday, May 20, 2019

Cancer: IN REMISSION

We got the news last week and we've been sitting on it, because, well, we're still processing it, but the doctor has officially pronounced Cathy In Remission. This mean that she is currently cancer-free. It does not mean we are off the hook. The next year to two years will be regular blood labs and follow-up appointments. Type 3 Ovarian cancer has a middling-high chance of recurrence, though that is mitigated by a number of factors, including how well the patient responded to chemotherapy. Cathy responded very well to the chemo, so well, in fact, that in the event of a recurrence, chemotherapy as an option is still on the table.

These are all good things, and we are grateful in our profound relief, exhausted in our awareness of how lucky we got. Right now, Cathy is focusing on getting back on her feet. There's something about aggressive cancer treatment, surgery, and pneumonia that really takes it out of a person, you know?

I'm healing, too. Slowly. Oh. So. Slooooooowly. But I am healing.

We are currently bracing for bad weather and trying to figure out what the rest of our life looks like. For now, the good news is enough.

Thanks for taking this journey with us. You are a big part of the reason why we got through it.

Sunday, May 5, 2019

Health Update: A Mixed Bag of Nuts

I'm sorry it's been a while since I let you nice people know what's going on in our Saga of Middle-Aged Wellness. It's kind of been a "no news is good news" sort of thing, wherein Cathy was back on chemotherapy, and it was doing a number on her, but it wasn't anything we hadn't dealt with before--just maybe a little more severe, but we were really close to being done with it, so let's just power through to the end and celebrate, right?

Right. Well, sure, if that were all that was going on.

Cathy finished her chemotherapy last week. It was awesome, in that it was a real relief to be out of those woods, but unfortunately, she was too weak to even celebrate properly. However, we did ring the bell at the treatment center. It's a rite of passage, not unlike when you leave Long John Silver's and you're pretty sure you didn't get a food-borne parasite from eating at LJS. Only this is better because you didn't have to eat at LJS to ring the bell.

Next week, Cathy gets a CT scan, and if it's clear, then we are officially Done With Treatment and go into maintenance mode. This means getting blood work done every three months, for at least one or two years. They are very vigilant because of the change of a re-occurrence. Aside from that, we get to go rejoin the adult world.

Or so we thought.

Wednesday, March 20, 2019

Health update: Here We Go Again...

In all of the excitement about my harrowing incident, I forgot to mention that Cathy started chemotherapy again yesterday.

This was expected, part of the overall treatment plan: Chemo, Surgery, and more Chemo. We knew this was coming, and we knew it would be part of the overall plan. Cathy, bless her heart, is weathering it as best as she can. I am holding up less well. But we are united in our fervent desire for this to be over and done with so we can get on with being real people again.

Cathy has a minimum of three cycles of chemotherapy, which is three weeks' worth of treatments at a time. After three cycles, they will take a ct scan and maybe even a biopsy to see how everything is clearing up. If she's not clear, she gets another cycle, up to a maximum of six cycles. If she is clear, then we go into defensive mode, wherein we have a check-up every three months to see how the markers look. That will last up to five years before they pronounce her as "in remission."

Mind you, those are maximums and worst case scenarios. Given that she has responded very well to the chemo drugs she is on, this could be over sooner. We are hoping for the best, but expecting the worst. If this whole thing has taught us anything, it's taught us that.

The worst of the symptoms for Cathy is the neropathy. Her feet have gone partially numb at the soles and toes and when it flares up, it makes walking very hard for her. This puts the kibosh on the exercise they say she needs to have in order to keep up her strength. She did some yoga at the start of her chemo and I suspect she'll take it up again.

My infusions continue apace. I've got three more weeks of them, and I'm already getting grumpy about the daily visit to the hospital. Not their fault, by the way; they've been nothing but pleasant. I just hate that I have to do it.

I will be done in April, hopefully with all of it. Cathy's got a little farther to go, but we can see the light at the end of the tunnel.

Cathy's GoFundMe page has officially become our communal GoFundMe page. I'm hate asking, especially since so many of you have given so generously, but for those of you that haven't and can spare just $10, it would mean the world to both of us. At this rate, I'm sending the wedding comic pdf out to everyone who gives anything. Just follow this link. Thank you.

Monday, March 18, 2019

Six Days Closer to Death

Well. That was fun.


For those of you just joining us from another station, I've been recovering from a surgical procedure I had at the end of last year, literally on the 31st of December. It involved removing part of my lower abdominal pannus, which is that thing that hangs down over your belt. In my case, it had developed into panniculitis, which is when the fatty tissue hardens and in my case, blocked my lymph nodes, was pushing my legs apart, had gotten infected, etc. A real mess. And if I was to get healthy, as is my continued intention, it had to go first, so that I could, you know, walk more than ten yards without feeling like my hips were displacing.

The panniculitis got cut off  (in a panniculectomy) and the bottom of my abdomen was stitched back to my stomach and, well, aside from some scrotal edema (about which you probably know way too much), I was more or less okay. Turned out, it was less. A lot less.